Last night, we were transferred to Mott Children's Hospital in Ann Arbor. Madison rode in the ambulance and I was able to ride in the ambulance also, but I had to ride in the front. We were very worried about how Madison would do since she hates car seats, but she did fine.
Shortly after we got to Mott, we felt very relieved. Everyone there was ready for her and had plans and tests ready. They immediately did a chest x-ray, and some blood tests. They took her off oxygen, and just let her sleep through the night, so they could look over her information and make more of a plan. The electrophysiologist also came in to take a look at her.
Since she is in the intensive care, we could not stay with her in the room because there is no place to sleep, so we had to leave for the night. This was a concern and a relief. We didn't want to leave her for the night, but she basically had her own nurse that was going to stay in the room with her who would do feedings and comfort her if she was upset. We knew she was in good hands, so we went to stay at a hotel for the evening. It was really nice to get a good nights sleep in a real bed.
This morning when we arrived at the hospital Madison was sleeping. We were told that she hadn't eaten since 4:00 a.m. because they had to do a procedure that required her not to eat. When she woke up, she was HUNGRY!!! We spent about two hours trying to keep her settled until they could start the procedure. Thank goodness for sugar water!
Finally, the electrophysiologist came in to do the procedure. The procedure entailed taking a probe and putting it down her nose and throat. This probe enabled them to get some more information about her heart. This procedure also allowed them to give her an electric current that could possibly take her out of STV.
This gave them some good information. It also took her out of STV for a moment, but she went right back into it. This allowed them to diagnose her with PJRT. Which is Persistent Junctional Reciprocating Tachycardia. Which is a form of STV.
Here is the plan for Madison. Within the next hour, they are going to perform an echocardiogram on her to get more information about the functionality of her heart. If her heart functionality is adequate they are going to try a new medicine to try to break the PJRT. The doctor is not very optimistic about the new medicine working.
If the new medicine does not work, or if they are unable to try the new medicine, they are going to do a procedure called ablation. (For more info about ablation, click here.) This procedure is performed under general anesthesia and has risks, but considering she is in such good health, the risks are less. This procedure will likely be done on Wednesday, if they try the medication and it doesn't work. If they are unable try the new medication, they may do it earlier. She will be able to go home a day after the ablation and would not need any further treatment.
Whew, I guess that is all. We are SOOO happy that we came here! We feel like Madison is well taken care of and everyone here is SOOOO wonderful.
